Patient Organizations and Newsletters
National Fibromyalgia Research Association
National Fibromyalgia Research Association
NFRA provides a website with fibromyalgia scientific research articles and resource information for both health care professionals and FMS patients. NFRA distributes physician education packets at national medical meetings, funds FMS research and raises public awareness. www.nfra.net.
National Fibromyalgia Partnership
NFP is a national nonprofit FMS patient organization which offers valuable patient information and support group resources. $25 annual membership includes Fibromyalgia Frontiers, a quarterly publication addressing FMS coping strategies, research, treatment and conference information. NFP, P.O. Box 160, Linden, VA 22642-0160; 866-725-4404 toll free; email: firstname.lastname@example.org; www.fmpartnership.org. Some materials available in Spanish and French.
Since 1988, this member supported, self-help organization offers educational materials and resources for patients, their families, treating physicians, and support groups. Annual Membership of $28 includes quarterly, ad-free Fibromyalgia Network Journal, monthly eNews Alerts. www.fmnetnews.com. Toll-free phone support, free educational brochures, and doctor referrals. PO Box 31750, Tucson, AZ 85751-1750 (800) 853--2929, email@example.com. Related to the American Fibromyalgia Syndrome Association (AFSA), a national all-volunteer nonprofit organization dedicated to funding research that investigates the causes and treatments for fibromyalgia syndrome. Ninety percent of donations to AFSA go directly to fund research. AFSA, PO Box 32698, Tucson, AZ 85751. For more information or to donate call (520) 733-1570, www.afsafund.org, or e-mail firstname.lastname@example.org.
FibroAction is a UK based charity that aims to raise awareness of Fibromyalgia Syndrome (Fibro) and to educate people - including patients, their family/friends/carers, healthcare professionals, the media and the public at large - about the condition. Look to this site to find a support group in the UK, and news and updates with a focus on the European community. FibroAction, 46 The Nightingales, Newbury, RG147UJ. www.fibroaction.org
National Fibromyalgia Association
NFA is a nonprofit organization whose mission is to develop and execute programs dedicated to improving the quality of life for people with FMS by increasing public, media, government and medical community awareness. A tax-deductible donation of $35 or more ($45 Canada; $60 overseas) includes a subscription to the Fibromyalgia Aware magazine, a professional publication with in-demand topics and essential FM information. NFA, 2200 N. Glassell Street, Suite A, Orange CA 92865; 714-921-6920. www.fmaware.org
CFIDS Association of America, Inc.
This Association provides information, advocacy, research information and encouragement for the CFIDS community. Data on treatment, support groups and conferences is also provided. The CFIDS Chronicle, a quarterly publication is aimed at reporting the most current CFID/FMS research information; P O Box 220398, Charlotte, NC 28222 or 800-442-3437. www.cfids.org
National Institute of Arthritis, Musculoskeletal and Skin Diseases
NIAMS offers a free packet of fibromyalgia information containing lists of FMS organizations, a glossary, the American College of Rheumatology’s fact sheet and several FMS articles written by experts. NIAMS, P O Box AMS, 9000 Rockville Pike, Bethesda, MD 20892.
FMS Support Groups and Doctor Information
Many US and Canadian Cities have active FMS support groups. Check the local newspapers, hospitals and libraries for information. You can also contact the National Fibromyalgia Partnership for support group and FMS treating physicians in your area. Call 866-725-4404 toll free or visit their website www.fmpartnership.org. For FM-friendly doctor information contact Fibromyalgia Resources at email@example.com.
Fibromyalgia Information Foundation
This nonprofit organization was founded by Robert Bennett, MD, an internationally renowned fibromyalgia researcher. Together with Sharon Clark, PhD, FNP, this Foundation strives to support scientific research, offers patient educational conferences and maintains an excellent fibromyalgia resource website, which includes the most up-to-date scientific research articles and reviews. www.myalgia.com.
International MYOPAIN Society
The IMS is a nonprofit, international, interdisciplinary organization for research scientists, physicians, and other health care professionals interested in exchanging ideas, conducting research, or learning more about soft tissue pain syndromes like myofascial pain and fibromyalgia. It is a membership organization in service to the medical community and supporting international meetings. Visit www.myopain.org for more information.
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