Fibromyalgia Awareness – Why
Is It So Important?
Without fibromyalgia awareness there would be no private donations
to fund research. There would be no patient advocacy to impart information
to the National Institutes of Health to encourage them to fund FM
scientific investigations. Patient awareness would be even more
stifled with fewer support groups and volunteers to share the load.
There would be less opportunity to encourage medical schools to
teach new doctors about fibromyalgia, delaying the chance for more
health care professionals to learn about this illness in order to
diagnose and treat it. In fact, public awareness is so crucial,
a special day, May 12, Fibromyalgia Awareness Day, has been set
aside to offer you an opportunity to educate others regarding the
1. Research Funding:
Without people knowing what FM is, how can they be expected to donate
for research? Name recognition is imperative when it comes to asking
for money or other resources to advance FM scientific investigations.
If a volunteer requests a donation for breast cancer research, there
is no question about what that illness is or how it affects people.
If someone asks for a contribution for muscular dystrophy, you immediately
get a picture of “Jerry’s kids”. Fibromyalgia
has no visible signs or microscopic tests to illustrate the need
for research dollars. FM patients look healthy, even robust, yet
their pain often impacts their quality of life to the extreme. Pain
forces them out of their employment; sequesters them from family
and friends; and keeps them from fulfilling their life’s potential.
It is important to educate the public about this illness to improve
name recognition and knowledge about the impact fibromyalgia makes
on people’s lives in order for people to be willing to donate
funds for research.
2. National Institutes of Health:
The National Institutes of Health are becoming more knowledgeable
concerning fibromyalgia. They have held several fibromyalgia workshops
and seem to be motivated to continue encouraging better science
for FM. Our U.S. Senators and Representatives are showing that they
will respond to pressure by fibromyalgia advocates, if they are
educated concerning the needs of millions of constituents suffering
with this illness. News of fibromyalgia and its impact on individuals,
both in the work place, and at home, must be supplied to our congressional
leaders to ensure ongoing funding of NIH fibromyalgia scientific
investigations. It is imperative, then, that fibromyalgia awareness
and advocacy be spread to our Congressmen to remind them of the
importance of their assistance in ensuring ongoing NIH financial
support for FM scientific research.
3. Patient Advocacy:
FM awareness is reaching out to others to educate them about this
illness and the impact it makes on millions of peoples lives. Fibromyalgia
is a rather introverted illness. People who suffer with this illness
talk to others who have it; they confide in close friends and family.
They are not always willing to share with outsiders their symptoms
or the impact fibromyalgia has made on their lives. Sadly, these
people are made to feel that if they really wanted to get better,
they would, or, because they can’t prove they are sick, they
must have a psychiatric illness. Every other major health condition
has healthy volunteers carrying signs, holding fund raisers, and
offering assistance to sick people. Not so with FM! It is up to
people who are ill to supply their own advocacy. They must try to
drum up money, even when they no longer can work, to pay for postage
and printing, to advertise their support group meetings. If a rally
is called for, only sick people and their families and friends show
up – where is everyone else? Once again, awareness about an
illness encourages people to offer physical, financial and advocacy
4. Medical Education:
Without public awareness pushing FM education, doctors will continue
to graduate from medical schools without being taught about fibromyalgia.
Public opinion and outrage can encourage teaching universities to
offer better medical training to new doctors concerning FM, including
how it is diagnosed and how it is treated. It is imperative that
these new doctors learn not to blame their patients for being ill,
but to honor their Hippocratic Oath to help people who are suffering.
Awareness can make these changes happen for future generations of
The National Fibromyalgia Research Association
(NFRA) has developed the Fibromyalgia Awareness Bracelet to help
in this process. It is made from a soft, durable rubber material
and is pink (for women) and crimson (for chronic pain) which equals
“Women in Chronic Pain.” The National Fibromyalgia Research
Association, is a 501(c)3 nonprofit organization founded in 1992,
dedicated to education, treatment and finding a cure for fibromyalgia.
We realize men and children with fibromyalgia are not directly addressed
by this wording. However, because women’s illnesses are in
the limelight right now and fibromyalgia does affect more women
than men, about nine to one, this is the time to raise interest
for research funding. Research will eventually help all fibromyalgia
suffers, regardless of gender or age. These bracelets sell for just
$1.00 each by mail, plus shipping and handling based on the number
ordered. As a convenience we also offer charge card orders for the
bracelets on our website, but the pricing structure is different.
On line each bracelet sells for $3.00 which includes shipping and
handling costs and Internet charge card processing fees.
The money raised by the sale of these bracelets will be used 100%
for research, education and public awareness with no administrative
costs deducted. This is your opportunity to support fibromyalgia
awareness both as FM patients and supporters of FM patients. Remember
May 12, Fibromyalgia Awareness Day, is coming. These bracelets can
be your opportunity to spread the word about this puzzling, painful
For mail orders, please print off the order form and send it along
with your check or money order to the National Fibromyalgia Research
Association. (Mailing information is included on the form).
REMEMBER – THIS IS A FUNDRAISER FOR NFRA AND PROFITS FROM
EACH BRACELET YOU PURCHASE HELPS RAISE PUBLIC AWARENESS, PROVIDES
EDUCATION AND FUNDS RESEARCH TO FIND THE CAUSE AND CURE FOR FIBROMYALGIA.
Click Here to Download a PDF version.
Show your support with Fibromyalgia Awareness Bracelets. Click
on the graphic below to order online:
For mail orders - print off the advertisement and follow the directions. For charge card orders, please click on the donate.net banner included on this page.
National Fibromyalgia Research Association
PO Box 500
Salem, OR 97308
* NFRA is a non-profit organization
and proceeds will be used for FMS research, education,